The University of Exeter is designing a support programme for people who provide help and informal care (care partners) for someone with a kidney condition. This could include helping with medical care, help around the house, or sharing worries and stress. As a first step, the University is asking care
General News
Make sure you get the right treatment if you have COVID-19
Have you had a kidney transplant, or are you on equivalent immunosuppression (e.g. you have immune-mediated kidney disease? Have you received B-cell depleting-therapies or on equivalent immunosuppression (e.g. rituximab)? Are you CKD Stage 4 or 5, or on dialysis? Kidney Charities Together have produced a useful guide on what you
Melody study will investigate how well third doses of Covid-19 vaccines protect the immunocompromised
Hear the MELODY The MELODY study will involve 36,000 immunocompromised people across the UK, starting with those with kidney and other organ transplants. The study will later include people with cancer and autoimmune diseases. Immunocompromised people tend to be less likely to develop an antibody response after vaccination. Using an
Guy’s Adult Transplant Games Team
Guy’s Adult Transplant Team are staying active until the next British Transplant Games scheduled to take place in Leeds from 28 to 31 July 2022 after the British Transplant Games had to be cancelled in 2020 and 2021 due to the coronavirus pandemic. Football Team The Guy’s transplant football team
The Kidney Kitchen 2022 calendar is here!
GSTTKPA purchased Kidney Kitchen 2022 calendars for dialysis (haemo- and peritoneal) and advanced kidney care patients at GSTT. Our thanks to GSTT Renal Dietitians for distributing the calendars. Produced by Kidney Care UK, the 2022 calendar includes tasty, kidney-friendly recipes with space to note your appointments and reminders. This year’s
Managing your fluid restriction from a dialysis patient’s perspective
Zandria Richard’s personal experience of dialysis gave her great insight into the burdens experienced by kidney patients, including in dealing with the restrictions imposed by dialysis. She spoke with great authority and humanity at a National Kidney Federation conference about the challenges of living with a dialysis fluid allowance, sharing
Help make it easier for people to take part in donation and transplantation research
Health research is only possible thanks to the people who take part. And the more people who take part, the more rapid the improvements to organ donation and transplantation services. Why do people take part in research, or not… The UK Organ Donation and Transplantation Research Network (UKODTRN) wants to
Represent kidney patients in decisions about research at GSTT?
Would you like to represent kidney patients in decisions about research at GSTT? The Transplant Renal and Urology Directorate are looking for a GSTT kidney patient to join the TRU Project Board. The TRU Project Board is led by Professor Anthony Dorling and oversees clinical research in the TRU directorate.
A job with the London Kidney Network
The London Kidney Network (LKN) are advertising for a part-time Patient Partnership Engagement Lead (Band 7). Make a difference to kidney patient care The LKN is keen to hear from people living in London who are determined to make a difference to kidney patient care. The successful applicant will ideally
Updated NICE guidance, New Renal Registry Report & BMJ Awards Shortlist
We have three pieces of recent Kidney Disease and Kidney Care news we are excited to share. NICE Guidance on Chronic Kidney Disease The first is that The National Institute for Health and Social Care (NICE) has published new guidance on Chronic Kidney Disease for adults and children. You can