KIDNEY INFORMATION

Most kidney patients want to be involved in their treatment to some degree. To be involved and make decisions you need information. The best source of information is your kidney care team so don’t hesitate to ask questions.

However, sometimes people just want that extra bit of information to supplement what the professionals tell them. There is a wealth of kidney information available; this page signposts you to just some of the resources.

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Guy’s and St Thomas’ Resources

GSTT website

Information about kidney and transplant services.

Also a list of kidney patient leaflets, many of which can be downloaded.

MyKidney website

For information about kidney disease and treatment options. Created by kidney professionals and patients www.mykidney.org.uk

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UK Kidney Charities

Kidney Care UK

National Advocacy Service, counselling service, advice, information and financial support www.kidneycareuk.org

Kidney Research UK

For information and research updates www.kidneyresearchuk.org

National Kidney Federation

Information on all the different kidney diseases, treatments, and more. www.kidney.org.uk
Helpline: 0845 601 02 09

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Food

‘Rediscovering Food and Flavours’

Recipe book for kidney patients by celebrity chef Lawrence Keogh. Available as a downloadable PDF

‘Everyday Eating’

Recipe book created by Guy’s and St Thomas’ for kidney patients, available as a downloadable PDF

‘Kidney Friendly Cookbook’

From Kidney Care UK and designed with kidney patients and their families in mind. Available as a downloadable PDF

‘Food with thought’

The everyday ‘kind to kidneys’ recipe collection. Available as a downloadable PDF

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Understanding Blood & Other Test Results

Patient View

www.patientview.org
You need to register via your renal unit.

NKF

The NKF produce guides to blood test results for Dialysis and Transplant patients.

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Holidays

The NKF holiday pages

www.kidney.org.uk/help/holidays

Dialysis Freedom

Information about UK dialysis holidays www.dialysisfreedom.co.uk
Tel: 01509 808 668

Global Dialysis

Information about dialysis holidays abroad www.globaldialysis.com

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Other Resources

Carers UK
www.carersuk.org

Citizens Advice Bureau
www.adviceguide.org.uk

Diabetes UK
www.diabetes.org.uk

Gov.UK (Government Service & Information)
www.gov.uk

PKD Charity (Polycystic Kidney Disease)
www.pkdcharity.org.uk

NHS Choices (healthcare information)
www.nhs.uk

Smokefree (How to Quit Smoking)
www.smokefree.nhs.uk

Rare Kidney Diseases
www.rarerenal.org

Age UK
www.ageuk.org.uk

Disability Rights UK
www.disabilityrightsuk.org

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About Transplants

NHS Blood & Transplant

Information about organ donation and transplantation
www.organdonation.nhs.uk

Transplant Sport UK

Information about the UK and World Transplant Games
www.transplantsport.org.uk/

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What have we forgotten?

If you would like to recommend an information resource, let us know and we will try to include it. info@gsttkpa.org

The GSTTKPA has created this directory of links for all those interested in kidney healthcare. GSTTKPA does not take responsibility for the content of other sites.