Most kidney patients want to be involved in their treatment to some degree. To be involved and make decisions you need information. The best source of information is your kidney care team so don’t hesitate to ask questions.
However, sometimes people just want that extra bit of information to supplement what the professionals tell them. There is a wealth of kidney information available; this page signposts you to just some of the resources.
Kidney Care UK
National Advocacy Service, counselling service, advice, information and financial support www.kidneycareuk.org
Kidney Research UK
For information and research updates www.kidneyresearchuk.org
National Kidney Federation
Information on all the different kidney diseases, treatments, and more. www.kidney.org.uk
Helpline: 0845 601 02 09
PKD (Polycystic Kidney Disease) Charity
Support for adults and children with polycystic kidney disease, an inherited condition that affects the kidneys and other organs www.pkdcharity.org.uk
Gift of Living Donation (GOLD)
Transforming the lives of Black kidney patients by increasing the number of Black living donors, including a phone buddy scheme. www.giftoflivingdonation.co.uk
Kidney Kitchen
The place that food and drink has in your life when you have chronic kidney disease from Kidney Care UK Click Here.
‘Rediscovering Food and Flavours’
Recipe book for kidney patients by celebrity chef Lawrence Keogh. Available as a downloadable PDF
‘Everyday Eating’
Recipe book created by Guy’s and St Thomas’ for kidney patients, available as a downloadable PDF
‘Kidney Friendly Cookbook’
From Kidney Care UK and designed with kidney patients and their families in mind. Available as a downloadable PDF
‘Food with thought’
The everyday ‘kind to kidneys’ recipe collection. Available as a downloadable PDF
Patient View
www.patientview.org
You need to register via your renal unit.
Lab tests online
A guide to laboratory tests for patients by laboratory professionals.
https://labtestsonline.org.uk/
NKF
The NKF produce guides to blood test results for Dialysis and Transplant patients.
The NKF holiday pages
www.kidney.org.uk/help/holidays
Dialysis Freedom
Information about UK dialysis holidays www.dialysisfreedom.co.uk
Tel: 01509 808 668
Global Dialysis
Information about dialysis holidays abroad www.globaldialysis.com
A series of four short films has been produced for people living with kidney disease.
- Living with early-stage kidney disease
- Having dialysis
- Having a kidney transplant
- Supporting you to manage your kidney condition
Watch the films HERE.
Black living donor peer buddy scheme.
How GOLD (Gift of Living Donation) is giving Black kidney patients information and education on living kidney donation through Black people with lived experience. Watch HERE.
Carers UK
www.carersuk.org
Citizens Advice Bureau
www.adviceguide.org.uk
Diabetes UK
www.diabetes.org.uk
Gov.UK (Government Service & Information)
www.gov.uk
PKD Charity (Polycystic Kidney Disease)
www.pkdcharity.org.uk
NHS Choices (healthcare information)
www.nhs.uk
Smokefree (How to Quit Smoking)
www.smokefree.nhs.uk
Rare Kidney Diseases
www.rarerenal.org
Age UK
www.ageuk.org.uk
Disability Rights UK
www.disabilityrightsuk.org
NHS Blood & Transplant
Information about organ donation and transplantation
www.organdonation.nhs.uk
Transplant Sport UK
Information about the UK and World Transplant Games
www.transplantsport.org.uk/
If you would like to recommend an information resource, let us know and we will try to include it. info@gsttkpa.org
The GSTTKPA has created this directory of links for all those interested in kidney healthcare. GSTTKPA does not take responsibility for the content of other sites.