Most kidney patients want to be involved in their treatment to some degree. To be involved and make decisions you need information. The best source of information is your kidney care team so don’t hesitate to ask questions.

However, sometimes people just want that extra bit of information to supplement what the professionals tell them. There is a wealth of kidney information available; this page signposts you to just some of the resources.


Guy’s and St Thomas’ Resources

GSTT website

Information about kidney and transplant services.

Also a list of kidney patient leaflets, many of which can be downloaded.


UK Kidney Charities

Kidney Care UK

National Advocacy Service, counselling service, advice, information and financial support

Kidney Research UK

For information and research updates

National Kidney Federation

Information on all the different kidney diseases, treatments, and more.
Helpline: 0845 601 02 09

PKD (Polycystic Kidney Disease) Charity

Support for adults and children with polycystic kidney disease, an inherited condition that affects the kidneys and other organs

Gift of Living Donation (GOLD)

Transforming the lives of Black kidney patients by increasing the number of Black living donors, including a phone buddy scheme.



Kidney Kitchen

The place that food and drink has in your life when you have chronic kidney disease from Kidney Care UK Click Here.

‘Rediscovering Food and Flavours’

Recipe book for kidney patients by celebrity chef Lawrence Keogh. Available as a downloadable PDF

‘Everyday Eating’

Recipe book created by Guy’s and St Thomas’ for kidney patients, available as a downloadable PDF

‘Kidney Friendly Cookbook’

From Kidney Care UK and designed with kidney patients and their families in mind. Available as a downloadable PDF

‘Food with thought’

The everyday ‘kind to kidneys’ recipe collection. Available as a downloadable PDF


Understanding Blood & Other Test Results

Patient View
You need to register via your renal unit.

Lab tests online
A guide to laboratory tests for patients by laboratory professionals.


The NKF produce guides to blood test results for Dialysis and Transplant patients.



The NKF holiday pages

Dialysis Freedom

Information about UK dialysis holidays
Tel: 01509 808 668

Global Dialysis

Information about dialysis holidays abroad


Video Resources

A series of four short films has been produced for people living with kidney disease.

  • Living with early-stage kidney disease
  • Having dialysis
  • Having a kidney transplant
  • Supporting you to manage your kidney condition

Watch the films HERE.

Black living donor peer buddy scheme.

How GOLD (Gift of Living Donation) is giving Black kidney patients information and education on living kidney donation through Black people with lived experience. Watch HERE.


Other Resources

Carers UK

Citizens Advice Bureau

Diabetes UK

Gov.UK (Government Service & Information)

PKD Charity (Polycystic Kidney Disease)

NHS Choices (healthcare information)

Smokefree (How to Quit Smoking)

Rare Kidney Diseases

Age UK

Disability Rights UK


About Transplants

NHS Blood & Transplant

Information about organ donation and transplantation

Transplant Sport UK

Information about the UK and World Transplant Games


What have we forgotten?

If you would like to recommend an information resource, let us know and we will try to include it.

The GSTTKPA has created this directory of links for all those interested in kidney healthcare. GSTTKPA does not take responsibility for the content of other sites.