Time to share your views on your experience of kidney care in the Kidney Patient Experience Measure (PREM) 2022. The survey closes on 12 November. Give your views at https://www.kidneycareuk.org/prem
General News
Save the date. GSTTKPA Annual General Meeting
The Annual General Meeting (AGM) will take place on Saturday 26 November from 10.00 am to 12.00 noon. Due to rising cases of Covid-19, we have decided to hold the meeting by Zoom. We’ll send the Zoom link and other details before the meeting.
COVID-19: your latest questions answered by Kidney Care UK
The 10th Kidney Care UK coronavirus webinar is now available on demand. Watch the recording or read the post-webinar summary for: The latest information about Covid vaccines in people with suppressed immune systems Safety at work advice Updates about preventive treatments. Read more: https://bit.ly/3bgeY3m
Latest report on kidney care from the UK Renal Registry
The UK Renal Registry annual report analyses the care provided to people with kidney disease cared for by each of the UK’s adult and paediatric kidney centres. Read the latest summary written specially for patients at https://bit.ly/39DAiPO
iPads for St Thomas’ dialysis unit
If you are a haemodialysis patient and you are admitted to St Thomas’, you will dialyse in the hospital’s four-bedded unit. Being admitted to hospital is depressing and stressful, especially if you are dialysing, and you definitely need some distraction. It is not possible to install televisions in St Thomas’
Introducing Kidney Care UK Advocacy Officers for London
These are difficult times for everyone, but people with kidney disease face particular challenges. Jonathan Bartley and Ellen Hill, Kidney Care UK’s regional Advocacy Officers, are available to support and represent you, your families, and carers. Jonathan and Ellen have been trained to help with a range of issues relating to kidney
Help improve your virtual kidney care
South Bank University is working with Guy’s and St Thomas’ on Covid-recovery projects designed to support people accessing appointments online or by telephone. Share your views and experience on your virtual kidney care at a workshop on 19th May (11.30-3.00 pm). REGISTER To register, email healthlab@lsbu.ac.uk DOWNLOAD Virtual access to
Latest Covid-19 information for kidney patients
Watch the latest Kidney Care UK webinar If you missed the Kidney Care UK Question Time webinar on 7 February, you can now watch the recording and read a summary at https://bit.ly/3LxE7E6 Hear about up-to-date information about Covid vaccines and treatments, potential preventive treatments, as well as how to return
Help for those providing unpaid care, help, and support to someone with a kidney condition
The University of Exeter is designing a support programme for people who provide help and informal care (care partners) for someone with a kidney condition. This could include helping with medical care, help around the house, or sharing worries and stress. As a first step, the University is asking care
Make sure you get the right treatment if you have COVID-19
Have you had a kidney transplant, or are you on equivalent immunosuppression (e.g. you have immune-mediated kidney disease? Have you received B-cell depleting-therapies or on equivalent immunosuppression (e.g. rituximab)? Are you CKD Stage 4 or 5, or on dialysis? Kidney Charities Together have produced a useful guide on what you