Guy's & St Thomas' Kidney Patient Association (GSTTKPA)

At The National Kidney Federation Conference

The NKF is having its annual conference in this place. this place.

This afternoon, the Renal Tsar, Donal O'Donoghue launched the 'Transplant Manifesto', produced by the NKF and the All Parliamentary Kidney Group. You can download the Transplant Manifesto here as a PDF file..


Then in a session all about EPO, we heard from Iain Macdonald, a renal consultant at Kings, and also Rosie Savage, who's a renal patient at Kings, but also works there.

Rosie is now sitting beside me in the hall: We're listening to Juliet Reeves, a kidney patient who also happens to be a dental hygenist is talking about 'dry mouth syndrome' and other dental issues with particular relevance to kidney patients. It seems that sonic toothbrushes are the way forward. Apparently we should be using detergent-free toothpaste. If using 'normal' toothpaste, we should be avoiding 'sodium lauryl sulphate' in it, which is actually the same as washing up liquid. Other recommendations are:

Alcohol free mouthwash

Suger free chewing gum - stimulates Saliva

Probiotic lozenges (especially for post-tranplant patients on immunosuppressants).

posted by Andy W, Chair, GSTT KPA @ 3:53 PM