When asked in a survey, young kidney patients indicated that mobile phones (not surprisingly) are their preferred communication tool. The survey results also suggested that young kidney patients wanted support and information to help them become more independent in managing their kidney condition, particularly as they enter the teenage years.
Most importantly young kidney patients wanted to strike a balance between managing education, work and a good social life, with the demands of clinic appointments and often complicated medicine regimes.
In response to this the Guy’s and St Thomas’ KPA decided to work alongside young patients and staff of The Evelina, Great Ormond Street Hospital and Guy’s to produce and fund a smartphone app. The aim of the app is to help young kidney patients manage their care more effectively and signpost them to further information.
The MyKidneyCare app acts as:
- A place to store personalised kidney care information including medications and appointments.
- A place to make notes of concerns or questions for the kidney care team or GP
- A signpost to further on-line kidney care information
The app is available for Android smartphones; iPhones and iPads and is free to download.